My bruises have gone, and my scar is all but healed. However, things are still Quite A Bit Wrong, and seemingly not improving. Things are not supposed to click, crunch or ping when I stand up; things shouldn’t feel as though they’re moving around inside there when I move. I really shouldn’t still be wheelchair-bound … More Hips Don’t Lie, And Other Stories
I shan’t divulge his name because I’m too professional for that and I’m not mean, but I didn’t like the head of physio from the moment I saw him after my hip operation. He extended his hand for me to shake, and it was like clutching limp, soggy lettuce – and I never trust such … More Why I Hated The Physio Guy, And What I Should Have Said To Him
Just so you know, before you open my “read more” thingy, there will be a montage of photos spanning the last three weeks since I broke my hip. If you don’t like bruises or sutures, I suggest you don’t read past the cut. Since breaking my hip I seem to be doing very well. It’s … More On The Mend (Or, I May Actually Be Superhuman)
This time, I have no glorious bruises to show you (which, for me, makes a nice change actually) but I do have some pretty epic injuries all the same. Therefore, it’s time for me to do some epilepsy awareness stuff again. Blackouts. I hate blackouts. They last for mere seconds, but they can do a … More Epilepsy: Here We Go Again
I wouldn’t say it was awful, but it wasn’t brilliant. The fates conspired to ruin nice things for me by sending the Lurgy Fairy (in bloody Sweden of all places, while I was on holiday!) but we managed to make the best of it. At least my liver regenerated, right? So that’s good. Hoorah for … More Kicking 2017 Out Of The Door
Watermelon mocktails. I must try these! For some time now, I have been concerned about my drinking. Ian Duncan Smith and the DWP knocked me off my happy little sober wagon last year, and I have been struggling to climb back on ever since. Add my liver cirrhosis into the mix and I absolutely shouldn’t … More A Twist In My (Lack Of) Sobriety
Yes, I have just shown you the three stages that a damaged liver goes through. I owe this post to a beloved friend of mine from the States, who was already dying when I e-met her, but who urged me to fight and live. She died last November, just before my birthday. So I’m writing … More How My Liver Is Killing Me
Last year, I went for a PIP assessment, which I failed. Apparently, my “high level of intelligence” excludes me from being disabled (epilepsy, anxiety, being autistic… yeah, none of those incringe on my life at all, apparently). As for the ME/CFS… “I wish I could stay in bed all day.” This was actually said to … More ME/CFS Awareness: Not A Lifestyle Choice!
Disclaimer: The following post contains photographs of a spider, and a possibly distressing photograph of myself in intensive care, at death’s door. I don’t know how to hide them, and so I thought I ought to warn you.
It’s that time of year again, when the lovely people at Epilepsy Action start their drive to raise awareness of epilepsy. This year they asked members to contact them and tell them what epilepsy means to sufferers as individuals – because no two epileptic patients are affected in the same way, and this needs to … More March 26th: Purple Day For Epilepsy